Prayers for Nephew
- Thread starter MGMIAM
- Start date
Great news. Our prayers for Jedi will continue.
From the pictures it looks like his skin color is coming back. Hopefully that will be a good sign !
Great news Jedi. Keep up the fantastic improvements and u will be back to normal God willing very soon.
MGMIAM
Gold $$ Contributor
esterday Patrick joked with Jedi that he (Jedi) was 6 months old…well, his immune system is anyways! We very gratefully celebrated 6 months of God’s continued healing of Jedi after his transplant. We had a great day of playing at the “castle park” and having tacos with granny.
Today we are on our way to Madison for Jedi‘s CT scans, PET scan, pulmonary function tests, and specialized blood work. I imagine we will get the general blood counts quickly like we always have, but the scans and specialized blood work may take a bit. I will update everyone with results when they come in.
Jedi’s not excited about getting an IV today, so if you can please pray that goes in quickly and successfully we would appreciate it! We are praying for peace and acceptance in whatever God has in His plan for us. Jedi admitted to me last night that he is really hoping for his scans to be clear and his counts to come up, because he really wants to see his friends and be able to do more “normal kid stuff”. I told him we sure are praying for that as well! Thank you all for your support and I will check in soon! Blessings on your day!
“Then you will call on me and come and pray to me, and I will listen to you.”
Jeremiah 29:12
Today we are on our way to Madison for Jedi‘s CT scans, PET scan, pulmonary function tests, and specialized blood work. I imagine we will get the general blood counts quickly like we always have, but the scans and specialized blood work may take a bit. I will update everyone with results when they come in.
Jedi’s not excited about getting an IV today, so if you can please pray that goes in quickly and successfully we would appreciate it! We are praying for peace and acceptance in whatever God has in His plan for us. Jedi admitted to me last night that he is really hoping for his scans to be clear and his counts to come up, because he really wants to see his friends and be able to do more “normal kid stuff”. I told him we sure are praying for that as well! Thank you all for your support and I will check in soon! Blessings on your day!
“Then you will call on me and come and pray to me, and I will listen to you.”
Jeremiah 29:12
Great that he is as well as he is and looks like he will fully recover to lead a normal life once again. Prayers.
How is our little man doing ?
Prayers sent.
MGMIAM
Gold $$ Contributor
Good evening, Jedi family! Boy, it’s been a while since we’ve chatted, hasn’t it? In May, when we got the great news about Jedi‘s clear scans and increased immune system, we were told to have an amazing summer together, and we have done that. I can’t begin to tell you how many times this summer we have just looked at our sweet Jedi and thanked God for bringing him through the storms of cancer and a bone marrow transplant!
Jedi has spent his summer swimming, hiking, camping, biking, playing with friends, playing with his brothers, etc…just like an 11 year old boy should His strength and endurance are returning although not as quickly as he would like. He’s very aware of what last year took from him physically, but he also has the will to keep working at improving!
Every now and then a story from last year will surface; like today we were talking about this time last year was when he was very sick in the PICU. We reminisced and then Jedi ended our conversation with, “…and I wouldn’t have made it through without all the prayers being said for me!” He will never forget all the love and prayers he was showered with during his treatments
Jedi is almost to 9 months post transplant and that means a visit to Madison on Wednesday for specialized blood work and an appointment with his BMT doctor. He also will have his 9 month PET/CT scans next Monday to make sure his cancer is still in remission. We ask you to join us in praying for God results in all his testing! I will update once the results are in. Thank you from the bottom of our hearts!
I do have an additional bit of news to share with you about Patrick (Jedi’s dad). He had not been feeling well starting at the beginning of this year, but thought it was due to stress, not eating the greatest, and limited activity due to so much time in hospitals last year. He progressively got worse with swelling in his legs, difficulty breathing when he walked and tried to sleep at night, and a cough that persisted. At the beginning of June, he went to the doctor and through a series of cardiac tests was diagnosed with severe left-sided heart failure. Needless to say this was a huge shock to us and a struggle to come to terms with that kind of diagnosis in your 40s. The cardiologist’s theory is that Patrick had been in atrial fibrillation for quite some time and his body compensated up to this point. He was immediately put on medication to help get rid of the fluid that was collecting in his body. He lost a bunch of water weight within the first week and that helped him to be able to breath and sleep better. He was also put on a blood thinner and other cardiac medication to help his heart and prep him for a cardio version (where they attempt to shock the heart into a normal rhythm). He had to wait for a while to let the medication work, so he just had his cardio version this last Thursday. We are so thankful to report that it was successful, and he is now in normal sinus rhythm! All praise to God!
The doctors told us that some people stay in a normal rhythm for the rest of their lives, others get a few years of normal rhythm and still others go back to atrial fibrillation quite soon after the procedure. Due to the extreme dilation of Patrick’s heart, the providers are not sure if he will stay in a normal rhythm or if he will convert back into atrial fibrillation. The thought that keeps coming back to me is something Jedi said last year, “Mom, God still does miracles every day here on Earth!” So we hope and pray for those miracles for Patrick now, too!
Thank you all for your support and your prayers! Talk to you soon!
“Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.”
Ephesians 3:20-21
Jedi has spent his summer swimming, hiking, camping, biking, playing with friends, playing with his brothers, etc…just like an 11 year old boy should His strength and endurance are returning although not as quickly as he would like. He’s very aware of what last year took from him physically, but he also has the will to keep working at improving!
Every now and then a story from last year will surface; like today we were talking about this time last year was when he was very sick in the PICU. We reminisced and then Jedi ended our conversation with, “…and I wouldn’t have made it through without all the prayers being said for me!” He will never forget all the love and prayers he was showered with during his treatments
Jedi is almost to 9 months post transplant and that means a visit to Madison on Wednesday for specialized blood work and an appointment with his BMT doctor. He also will have his 9 month PET/CT scans next Monday to make sure his cancer is still in remission. We ask you to join us in praying for God results in all his testing! I will update once the results are in. Thank you from the bottom of our hearts!
I do have an additional bit of news to share with you about Patrick (Jedi’s dad). He had not been feeling well starting at the beginning of this year, but thought it was due to stress, not eating the greatest, and limited activity due to so much time in hospitals last year. He progressively got worse with swelling in his legs, difficulty breathing when he walked and tried to sleep at night, and a cough that persisted. At the beginning of June, he went to the doctor and through a series of cardiac tests was diagnosed with severe left-sided heart failure. Needless to say this was a huge shock to us and a struggle to come to terms with that kind of diagnosis in your 40s. The cardiologist’s theory is that Patrick had been in atrial fibrillation for quite some time and his body compensated up to this point. He was immediately put on medication to help get rid of the fluid that was collecting in his body. He lost a bunch of water weight within the first week and that helped him to be able to breath and sleep better. He was also put on a blood thinner and other cardiac medication to help his heart and prep him for a cardio version (where they attempt to shock the heart into a normal rhythm). He had to wait for a while to let the medication work, so he just had his cardio version this last Thursday. We are so thankful to report that it was successful, and he is now in normal sinus rhythm! All praise to God!
The doctors told us that some people stay in a normal rhythm for the rest of their lives, others get a few years of normal rhythm and still others go back to atrial fibrillation quite soon after the procedure. Due to the extreme dilation of Patrick’s heart, the providers are not sure if he will stay in a normal rhythm or if he will convert back into atrial fibrillation. The thought that keeps coming back to me is something Jedi said last year, “Mom, God still does miracles every day here on Earth!” So we hope and pray for those miracles for Patrick now, too!
Thank you all for your support and your prayers! Talk to you soon!
“Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.”
Ephesians 3:20-21
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