Journal entry by Dianna Schaller — 14 hours ago
The day finally arrived! Last night, at a few minutes before seven, Jedi bounced out of the room he was in for 38 straight days! The staff cheered, music played and Jedi rang the bell signaling the end of his inpatient BMT treatment. It was awesome and all praise goes to God for carrying Jedi and the rest of our family through this challenging time!
Patrick quickly drove Jedi and me to the hotel to meet the home health delivery man. Jedi needed to start his IV infusion right after discharge, so there was no relaxing. As I worked through the boxes and bags from home health Patrick went back to the hospital to clear out our room (which took a long time). We could have stayed at the hospital until today (and it would probably have been less rushed), but Jedi was so excited to get some fresh air!
Jedi needs an IV fluid bolus twice a day, IV antiviral medicine after that, tube feedings, and overnight IV hydration with magnesium. We have four different pumps to keep track of and I’m thankful they are all preprogrammed from home health. I noticed this morning that one of his lines was not giving a good blood return, so please help us pray that doesn’t become more of a problem. Jedi also needs medications by mouth that require timing in between meals, so that’s an extra challenge. He still hasn’t quite adjusted to the liquid medicine he has to take, so we have had to redo that one a few times. He also needs additional medicines crushed up, diluted and put through his NG tube. All of this, along with figuring out how to get him healthy food (that doesn’t upset his tummy) while in a hotel room, is an adjustment, but a welcome one!
The older boys are driving down here tonight and Brandon and Naomi are bringing our other boys tomorrow. We are so excited to be reunited!
We are planning to be in Madison for at least a month while Jedi has frequent outpatient follow up at the children’s hospital. We are praying that this will be a fun family time and that Jedi’s recovery will continue to move in a positive direction. Thank you all for praying for Jedi’s treatment and recovery! We are so blessed to have all of you supporting us. Most importantly we are blessed to have a Savior who “...is able to do immeasurably more than all we ask or imagine, according to His power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.”
Ephesians 3:20-21
Read Moreof the journal titled "To Him be the Glory"

Music, signs, noisemakers...oh, my! This staff is the ...

The celebration parade!

After ringing the bell!

Can you see the huge smiles under our masks?

Getting settled in with his “wheel-y buddy”